Read Time: 5 minutes
Author: Susan Sample, Writer-in-Residence
鈥淭ell me a story about your day,鈥 asks my three-year-old grandson every time we鈥檙e together. It doesn鈥檛 matter whether it鈥檚 9 a.m. or 7 p.m. We may be playing with dump trucks and police cars or have just hugged on his way into our home. He delights in immersing himself in the world of story, especially if he鈥檚 the central character. Maybe that鈥檚 because we鈥檙e homo narrans, as communication scholar Walter Fisher claimed: 鈥渟torytelling animals鈥 who use narrative to order our experiences and give them meaning. We create communities and connect to others through stories. And at the end of life, we use stories to heal.
鈥淥ver the years, I came to realize,鈥 writes David Kessler, co-author of On Grief and Grieving with Elisabeth Kubler-Ross, 鈥渢hat there鈥檚 a crucial sixth stage to the healing process: meaning.鈥 When we talk about memories with our loved ones nearing the end of their lives, we overlay grief and pain with richness of a life remembered in stories. 鈥淸M]eaning both begins and ends with the stories we tell,鈥 says Kessler in his 2019 book, Finding Meaning. 鈥淗ealing doesn鈥檛 mean the loss didn鈥檛 happen. It means that it no longer controls us.鈥
As the writer-in-residence at Huntsman Cancer Institute, I have the privilege of helping patients, family members, and caregivers, as well as physicians and nurses, write their stories. Cancer compels us all to try to make sense of the disease, the role it plays in our lives personally and professionally, and to find meaning in our experiences. I am honored to witness these intimate accounts of pain and love, joy and suffering. And I am humbled when I am reminded yet again of how understanding evolves slowly. It is not a quick lesson. As Kessler says, 鈥淢eaning takes time. You may not find it until months or even years after loss.鈥
It鈥檚 been more than two years since I worked with a patient I鈥檒l call 鈥淒ennis.鈥 He was diagnosed with a late-stage cancer in the spring; he didn鈥檛 survive the fall. Yet, the five months he lived with cancer enlarged his life far more than the tumors that made speaking so difficult. He wanted me to write that story for his sons.
I鈥檇 thought we鈥檇 have at least a week. I met Dennis on a Wednesday afternoon in his hospital room. We planned to talk when he returned for outpatient therapy the next week. Friday, however, his social worker called to say that, based on his new scan, he would be discharged for home hospice. But, the social worker said, he really wanted to talk to me. Could I come to his room right now? I hurried up from the Wellness & Integrative Health Center with my writing cart, stocked with paper, pencils, pens, and books I鈥檇 I thought might be useful: Your Legacy Matters and Ethical Wills, among others.
They weren鈥檛 necessary. Dennis knew what he wanted to say; he just needed help ordering his ideas and shaping them into a letter. I began typing as he talked. Here and there, I鈥檇 ask a question: Did you go on any other vacations together? What else do you remember about watching your son鈥檚 state championship? I glanced down at the left corner of the screen: 355 words. Do you want to add anything else? 鈥淛ust tell them again and again that I love them, I love them, I love them.鈥
That night, I transcribed his letter, printed copies on yellow paper, and overnighted them to his home in southern Utah. He died soon after.
Remembering this still makes me profoundly sad. It also makes me profoundly grateful: I was a stranger invited to witness the intimacy of another person鈥檚 life, profuse with love and gratitude. Yet, Dennis鈥 life hadn鈥檛 always been that rich. He鈥檇 told me he鈥檇 been 鈥渧acant鈥 in his family for many years; cancer became the means to reconciliation. He was welcomed back into his family鈥檚 home and their hearts. He鈥檇 take the intense pain of cancer any day, he said, for the meaning he and his family had found in the past months.
As I tell this story, I notice I use time to order the events and try to make sense of what happened. That鈥檚 our fallback as storytelling animals. This happened and then this and then this鈥. But one word Dennis chose makes me pause: 鈥渧acant.鈥 It won鈥檛 leave me, even after two years. Not because of the emptiness of pages I鈥檇 helped a dying man fill. Not because of his absence in the lives of those he loved painfully. Not because of the claims to regret, guilt, and shame he finally let go. Dennis showed me how a vacant space can be made full.
If cancer were a story, numbers would be the central characters: tumor markers are measured in numbers, numbered disease stages, diagnoses delivered in months and years, survival probabilities calculated in statistics. But what if we take numbers out of the telling, as Dennis did? What if the story of cancer is told in the timelessness of love?
Dennis ended and began his story with essentially the same words: Just tell them how much I鈥檝e loved them, always. 鈥淢eaning,鈥 says Kessler, 鈥渃an be found in the life of anyone who has ever occupied space on this planet or in someone鈥檚 heart.鈥 Whether hidden among fifty-some hard years or the dazzling novelty of three years鈥 existence, the details that make up the stories we tell are healing. They replenish us, enriching our lives with the vibrancy of others.