Rainbow Kids Consultation Service for Children With Life-Threatening Illnesses
Call Us
801-662-3770
Option 1) Patient scheduling
Option 2) Speak directly with our clinical team
Rainbow Kids at Primary Children’s Hospital is a consultation service available for any child experiencing a life-threatening illness. Our program is here to help both your child and family deal with any concerns during a time that may be frightening, confusing, and overwhelming.
Our team works with you to develop goals of care for your child’s individual circumstances and medical condition. Those goals then help shape your child’s treatment plan. Rainbow Kids’ mission is to help you, your child, and your family find comfort, support, and hope.
Benefits of Pediatric Palliative Care
As parents of a child with a life-threatening illness, you walk one of life’s most difficult paths. Your family does not have to find the way alone. Rainbow Kids is here to offer comfort, advice, and support to your family wherever the path may lead.
Our program offers support and help each step of the way
Communication
Our team can help you and your child communicate with those important to you:
- Your health care team
- Family members
- Your child’s siblings.
We can also assist in gathering and understanding the medical information you need to make the best decisions for your child and family.
Spirituality
Our team is available to help your child and family explore the meaning of what is happening as you face the challenges of serious illness. We can also assist your family in conÂnecting with your faith group, at your request.
Emotions
Our team offers a safe setting to talk about the difficult thoughts and feelings your child and family may experience.
Physical symptoms
Our team can help your health care team minimize pain and other uncomfortable physical symptoms, especially toward the end of life.
Social connections
Our team can help you find ways to stay connected with your child’s social group:
- School
- Neighbors
- Faith community
- Friends
Our program is available to children and their families regardless of insurance status.
You can reach us Monday through Friday at 801-662-3770
Pediatric Palliative Care Team
The Rainbow Kids interdisciplinary team includes a variety of specialists:
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Social workers
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Chaplains
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Child life specialists
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Music therapists
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Nurses
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Nurse practitioners
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Our team members have the specialized training and experience to work with you and your physiÂcians. We are dedicated to compassion and underÂstanding in all aspects of care. We are here to support you and help you find the path that is best for your child and your family.
Find Palliative Care Near Me
A Relationship Created for the Best Pediatric Care
For pediatric specialty care, Intermountain Children's Health is affiliated with Ï㽶ÊÓƵ of Utah Health. U of U Health physicians see patients at , , and other locations throughout the Salt Lake City valley.
It's a shared mission of providing health care, education, and research. It comes to life through collaboration on clinical care, research, and educational programs.
Primary Children's Hospital operates as the main pediatric facility for the U of U Health system, providing care in more than 60 medical and surgical specialties such as surgery, oncology, cardiology, orthopedics, and others. Most of the providers at Primary Children's Hospital are faculty members at U of U Health.
This partnership delivers care to advance pediatric medicine while educating future generations of health care professionals.
Hospice Vs. Palliative Care
Palliative care is a service offered to any child with a life-limiting illness. It can be offered at the same time as curative or life prolonging treatment.
Hospice care is palliative care at the end of life. It is usually an option when a child has a life expectancy of fewer than six months.
Concurrent care is an insurance benefit offered by select public and private insurance companies that allows for both curative, life prolonging care and hospice care to be provided at the same time. Concurrent care still stipulates that a child must have a life expectancy of fewer than six months.
The graph on the right shows how a palliative care team can provide care and support to a child throughout their life from diagnosis to after death in bereavement support for their family.
Hospice settings and home-hospice care provide extensive services to terminally ill children. Care usually involves relieving symptoms and providing psychological and social support for the patient and family. In addition, hospice philosophy provides for the spiritual and cultural needs of your child and family. The goal of hospice care is to provide the terminally ill patient peace, comfort, and dignity.
Research has shown that hospice care at home helps a family as a whole. In addition to being in the comfort of the home, family members can also take an active role in providing supplemental, supportive care to the patient.
What Services Does Hospice Care Provide?
Hospice often includes an extensive multidisciplinary team:
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Doctors
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Nurses
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Social workers
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Chaplains
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Home care aides
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Trained volunteers,
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Pharmacists
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Bereavement counselors
Hospice services are similar to home health care services, but may also include:
- Spiritual services and religious needs
- 24-hour care or on-call care
- Respite care
- Bereavement support
Resources
If you have navigated here as a result of a medical error or challenges in communication with your medical team and you are seeking a service to provide support and listen to your feedback about your experience, please contact IHC's
SOAP: Supportive Oncology for Adolescents and Pediatrics
The SOAP team helps children diagnosed with cancer or a blood disease.